October 19, 2026
Mrs. Foushee submitted the following resolution; which was referred to the Committee on Energy and Commerce
Expressing support for the designation of the third week of October as National Hunter Syndrome Awareness Week
.
Whereas Hunter syndrome, also known as Mucopolysaccharidosis Type II (MPS II), is a rare genetic disorder affecting approximately 1 in 100,000 to 170,000 live male births worldwide;
Whereas Hunter syndrome is caused by a deficiency of the enzyme iduronate-2-sulfatase, resulting in the harmful accumulation of complex sugars in the body’s cells and leading to progressive damage to organs and systems, including the brain;
Whereas symptoms often appear in early childhood and may include developmental delays, physical impairments, and a significantly shortened lifespan;
Whereas early diagnosis and intervention are critical to improving quality of life and outcomes for individuals affected by Hunter syndrome;
Whereas increased public and medical awareness can lead to earlier diagnoses, better treatment options, and expanded research efforts toward potential therapies and a cure; and
Whereas families affected by Hunter syndrome face extraordinary emotional, financial, and medical challenges, and deserve greater support, understanding, and advocacy: Now, therefore, be it
Resolved,
That the House of Representatives—
(1)
supports the designation of National Hunter Syndrome Awareness Week
;
(2)
encourages Federal agencies, research institutions, and advocacy organizations to expand efforts in education, research, and the development of treatments for Hunter syndrome; and
(3)
urges continued congressional support for funding rare disease research and initiatives that directly benefit individuals and families in the Hunter syndrome community.