February 27, 2025
Mr. Johnson of Georgia (for himself, Mrs. McBath, Ms. Wilson of Florida, Ms. Velázquez, and Ms. Norton) submitted the following resolution; which was referred to the Committee on Energy and Commerce
Raising awareness for the sarcoma cancer chordoma.
Whereas chordoma is a slow growing, yet aggressive bone cancer of the skull and spine;
Whereas it strikes people of all ages and affects more than 25,000 individuals worldwide;
Whereas, each year, thousands of people are diagnosed with chordoma including about 300 people annually in the United States;
Whereas chordomas are among the most complicated tumors to treat due to involvement of critical structures such as the brain stem, spinal cord, and important nerves and arteries;
Whereas surgery or radiation performed by a skilled treatment team can be curative for some patients, but even with the best care possible, the recurrence rate remains high; and
Whereas no drugs are known to cure or effectively control the disease, meaning that patients whose disease progresses after exhausting surgical and radiation options have little hope for a full recovery: Now, therefore, be it
Sec.
That it is the sense of the House of Representatives that chordoma patients and families need increased funding and support for—
(1)
accurate and early diagnosis;
(2)
the development of new treatments, diagnostics, and cures;
(3)
fewer hurdles between research and new treatments; and
(4)
patient-centric approaches to drug discovery and development.